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Living With Low Vision Blog

Patty White writes about her life with low vision.



The Girl with the Focus Conundrum PDF Print E-mail
Saturday, 21 August 2010 23:18

My world is full of puzzles as I seek a semblance of clear vision. I am determined to do what I love to do, at the moment I want to do it. I like cooking and gardening, reading and writing, knitting and jewelry making, just for starters. I even enjoy watching TV sometimes. Like a normal person, I often have more than one thing going on, but seeing what I am doing is where my life gets complicated.

 

I think that others without this type of problem will never quite get what this world is like. Perhaps from an odd kind of loneliness, that of someone inside a bubble of sorts, I keep having conversations with myself, trying to put language to what living with this vision is like.

 

With my particular eyes, my entire visual field is blurred, not well focused (without the use of devices, that is). In a nutshell, finding focus with devices is possible, but to focus through distance is another matter entirely.

 

I used to a photographer. I exhibited and was a college photography teacher. In photography we use lens aperture and shutter speed settings to manipulate “depth of field,” controlling how the negative and resulting photograph show focus, near to middle to far from the camera lens. A photographer can become quiet creative working with depth of field.

 

For my eyes to see anything in focus, I must use low vision aides. And my depth of field is limited to one distance at a time. Focus from these eyes is fractured in space. Seeing spatially where focus is fractured is a constant and pretty strange experience.

 

For example, wearing my glasses, just my everyday distance correction, I see a great deal. I definitely see better with the correction than without it. But my glasses do not restore sharp focus, texture or detail, at any point in front of me, including my peripheral vision. Add yellow glasses, and I pick up more texture, but not all of it. If I clip onto my glasses a +5 magnifier, or put on my old trusty Visor Mag (a pair of lenses mounted on a head strap), a world of options opens up on the sharp focus front.

 

Options, you say? Well, herein begins the conundrum. You see, to get the prized clarity I seek, like to thin lettuce seedlings in the garden, for example, a clip-on or head worn pair of lenses works, but the focal distance comes in close to my face. So the other day I did well on the lettuce thinning project, but I had to lie down on my belly in the dirt to see what I was doing. Just me and some earth worms spending a little quality time.

 

To further expose myself, let's move to my chair in the sitting room where Ken and I visit, read, or watch TV. My chair has all this stuff around it. If I want to watch TV, I use Max TV glasses and am quite happy. But it is confusing to wear them while I eat or knit because anything close to me is completely out of my field of view.

 

Now, I like to knit while watching TV. Enter the need for compromise. The +5 clip-ons actually work pretty well if I need to watch my knitting stitches. If I want to see what Orzo the cat just did, I flip them up, and that works if he's nearby. But when the +5s are flipped up and he is further away, or if something happens on the TV, I need to switch entirely to the TV glasses. So moment to moment I can get pretty busy managing my devices.

 

Sometimes I think the behavior I exhibit around this yearning to see detail may seem downright odd. It would no doubt make a good comic strip. I think I may have made peace with the fact that this constant conundrum simply is what it is. It is my choice to keep doing things I enjoy. It is my choice to refuse limitations.

 

Recently, I have felt waves of gratitude come over me as I continue to process my evolving world: gratitude to Ken for his endless curiosity, observation, and search for solutions. And gratitude that I have kept myself so well entertained over these many years as I have lost a great deal that was precious to me. I truly enjoy myself now, at this juncture, at least much of the time. But these trade-offs of where and with what to fix the focus, and of how to collect and manage devices at hand, make for a strange and complicated experience of the world that few people really understand, or should be expected to understand.

 

Would the comic strip be a worthwhile new outlet? Anything that becomes funny in this life is a laugh worth sharing, don't you think? I bet someone who is reading this has already thought of a cartoon.

 

 
Magnifying On the Go PDF Print E-mail
Thursday, 17 June 2010 18:30

Several people have suggested I write more product reviews in these pages. Readers are correctly getting the idea that I use a lot of devices to keep me going. Now that a very good electronic pocket magnifier has come out for under $300, I think it is time to write about pocket magnifiers. I think I will write "Magnifying on the Go" as a series, because there are several products and much that has changed, fortunately for the better.

 

A basic point is that everyone with a vision impairment that prevents easy reading of price tags, restaurant menus, ingredient labels, and the hundreds of printed items encountered while “out and about” should own some form of pocket magnifier to remain engaged and to feel less isolated from the information that is around them.

 

The most common pocket magnifier is a traditional magnifying lens. Alas, as you will learn in earlier posts and our FAQ section, the magnifying lens issue is a big fat can of worms, particularly as vision worsens. In a nutshell, you need the right power; you need to hold the lens correctly to get its best help; the lens needs to be a lighted one or you otherwise have to find good light. And, as I mentioned in an earlier post on this topic, you absolutely run into your prescription glasses as a bump on this road. Multi-focal glasses and pocket magnifiers are a prescription for confusion!

 

People who work or trade at my local Trader Joe’s have seen see me over the years, elbow of my magnifier hand propped on a shelf, food box in the other hand, and my old, hand-held, lens magnifier up against my eye, light on, a couple of inches from the usually tiny ingredients list I am trying to read on a food box. (I am on a perpetual hunt for the dreaded potato starch, hidden under other names and enemy to my body’s digestion.) Grocery shopping is a slow process, indeed, if you lack good vision and care about food labeling!

 

A couple of new things are out that make the magnifier issue less difficult. For those able to use a 3x or 4x lighted magnifier, which is more forgiving about focal distance, but who dislike the bulk or weight of the traditional pocket magnifiers of that power, Eschenbach’s LED-lighted Easy Pocket lens is thin and light as a summer breeze. Unfortunately, these are not available stronger than 4x magnification, which is about 14D in this brand.

 

Even better for people like me is to try an electronic pocket magnifier. I haven't liked them until recently. Now they have gotten much better, cost less money, and they work! For example, the new Aukey, by the Chinese company Aumed, is a great place to start. The Aukey offers an ultra sharp and steady image. It is easy to use and allows you to view that ingredients list with the contrast, comfortable distance, and print size you need to see it well. You hit a button to make the type bigger, rather than needing to find a stronger magnifier for smaller type.  A miniature CCTV, Aukey is the lightest electronic pocket we’ve seen to date. The freeze frame button lets you capture and view the ingredients list (or clothing label, for that matter) as a still image. The very best thing, besides the cheerful Aukey colors and true “pocket” size, is that Aukey is under $300.

 

It is my view that nany more people will now consider electronic pockets as convenient, and the best way to stop struggling so hard when you need to see things on the go.

 

 
In Memoriam PDF Print E-mail
Sunday, 30 May 2010 00:00

Marjorie Sundvahl Newton passed away on April 30, 2010.  She was 94 years old. She was my mother and the love of my life.  I have been able to think of little else these recent weeks. I wrote earlier about my dad, who had a bucket of eye problems as I was growing up. My mom, too, was not spared problems with her eyes as she aged.

My mother was an adventurer, always independent, a graduate of Purdue University, class of 1937. She charted her own course, doing things her own way throughout her life. When she was in her 80s and living in Boise, Idaho, she developed a cataract. She also learned she had dry macular degeneration (AMD).  I went with her to the eye doctor. In fact, I couldn’t drive in those years because of my own eye troubles, and my mom drove us around. I knew where things were in Boise, all the one-way streets, for example, and she didn’t. We made a great team, then, and always.

Her eye doctor had more than one discussion with her about whether or not to perform cataract surgery, or lens replacement as they call it, because of the underlying macular degeneration. One comment that stuck out in my mind was that having a new, clear lens might just make the blurring from the macular degeneration more pronounced, the outcome thus mediocre.  (The doctor never addressed another issue, about which I have heard a great deal since, that the surgery could possibly cause the dry AMD to turn wet. The jury may still be out on that one, but it is a worthwhile question to ask.)

Mom finally agreed to do the cataract surgery. We went in for her pre-operation appointment. The physician assistant began by saying, “You are here because we’re going to give you a new lens.”  At that point my mother said what I had heard her say before and would hear her say many times after, “Oh no you don’t!”  The assistant looked right at me and said she guessed we were done with the exam.

My mom lived another decade without any intervention with her eyes. She enjoyed life, was playful with people if they didn’t boss her, and she loved the trees and birds and water of the Pacific Northwest.  She perfected a finely tuned funny bone throughout her long life.  Near the end, we were never sure what was so funny, but something was. There are just no words to describe how much I miss her and will always ache for more of the big love that she was to me.

 
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